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Time-smart ways busy teens can continue social activism during the school year

Time-smart ways busy teens can continue social activism during the school year

When kids head back to school, it’s easy to get swept away with schoolwork, extra-curricular activities and socializing – and forget the issues that teens are passionate about when they…

Rare Disease Impact Report quantifies patient and caregiver challenges on journey to diagnosis and beyond

Rare Disease Impact Report quantifies patient and caregiver challenges on journey to diagnosis and beyond

Getting a diagnosis is just the first of many challenges patients with rare diseases – and their caregivers – face. “We went through a number of specialists until we found…

New initiative celebrates unsung heroes of severe allergy awareness

Individuals at risk for anaphylaxis – a severe, life-threatening allergic reaction – know the importance of having people around them who can help with allergen avoidance, such as bringing allergy-friendly…

Rare Disease Day 2013: Maintaining bone health in people with multiple myeloma

In honor of the sixth annual Rare Disease Day, celebrated on Feb. 28, it is important to drive awareness about some rare cancers that are many times undiagnosed until the…

The new year welcomes a new generation of inspiration

The new year welcomes a new generation of inspiration

In 2012, the world watched as women made historic gains in everything from Congress, with an all-time high of 20 women in the U.S. Senate – to the field, where…

Cycling to help stop diabetes

Cycling to help stop diabetes

The American Diabetes Association is challenging bicycle riders to be part of the movement to Stop Diabetes(R) by participating in the annual Tour de Cure(R), a cycling event to raise…

Rare diseases: Increasing awareness for better patient outcomes

Getting a diagnosis of any cancer can be frightening, but for those diagnosed with a rare cancer, the emotional toll can be much worse. For some of these patients, the…

Giving back is the best way to start the new year

Giving back is the best way to start the new year

If there’s one thing that unites us, it’s that doing something nice for someone else has a way of making us feel good. And sometimes, there’s no better reminder of…

Nearly 1 in 10 Americans lives with a rare disease

Nearly 1 in 10 Americans lives with a rare disease

Did you know that the same number of people die each year from idiopathic pulmonary fibrosis, or IPF, as breast cancer? And yet IPF, a rare and debilitating disease that…

Caregiver 101: Creating a safe and happy environment for your loved ones

Caregiver 101: Creating a safe and happy environment for your loved ones

Nearly 66 million people, or 29 percent of the U.S. adult population, are providing care to someone who is ill, disabled or aged, according to the National Center for Caregiving.…

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